Resources

RESOURCES

Omega Home Network, a nationwide organization of social model homes for the dying

Hospice of Central New York

Community Living Advocates, a local CNY resource clearinghouse for seniors and those with disabilities

Cancer Connects, offers resources, assistance, and more for those with a cancer diagnosis and those serving as caregivers

211-CNY, community services and resource listings

St. Agatha Foundation: The Foundation provides support, comfort and care to breast cancer patients through financial assistance programs, allowing patients to focus on their treatment, not their bills.  

Caregiving Mentor, connect with a mentor and explore other resources for caregivers

GRIEF & BEREAVEMENT RESOURCES

Hope for Bereaved, Grief and Bereavement support

211-CNY, local bereavement counseling listings

Modern Loss, a place to share the terrain of navigating life after a death. Beginners welcome.

GUIDANCE FOR ADVANCE DIRECTIVES

Advanced Directives (Health Care Proxy and Living Will) in New York State

• https://ag.ny.gov/sites/default/files/advancedirectives.pdf
• https://ag.ny.gov/uploads/living-will
• https://www.nysenate.gov/sites/default/files/Healthcare%20Proxy%2012.10_0.pdf

Five Wishes, an advance care planning program

Care to Talk Cards, a way to spark meaningful caregiving conversations with your loved ones. Offered through the AARP

GUIDANCE FOR CREATING SPACES FOR DISCUSSION ON DEATH & DYING

Death Café, a method for hosting group-directed discussions of death with no agenda, objectives or themes. It is a discussion group rather than a grief support or counselling session.

Death over Dinner, a program that offers guidelines for hosting a dinner party gathering to discuss end-of-life with family and friends.

The Conversation Project, a public engagement initiative of the Institute for Healthcare Improvement (IHI), with a goal to help everyone talk about their wishes for care through the end of life, so those wishes can be understood and respected.

VIDEOS & PODCASTS

Dr. Atul Gawande, “Being Mortal: Medicine and What Matters in the End,” presented on Talks at Google

Dr. Ira Byock, “Dying Well,” presented on Dartmouth Hitchcock’s Healthy Highlights Podcast

Dr. BJ Miller, “What Really Matters at the End of Life.“ A palliative care physician who thinks deeply about how to create a dignified, graceful end of life for his patients